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My TGA: When Memory Becomes Unmoored

Below is something I wrote last year about an experience I had. A little different from my usual photos and commentary posts. Perhaps you know someone who had a TGA. I had never heard of it until I landed in the hospital.

Saturday, January 23, 2016

Several people are crouching close by. They speak deliberately to each other and to me. I respond to their questions but I have no sense of what I am saying. We’re in a very small space. I am lying down. Is this room moving, is this a vehicle? Why am I here? The scene quickly fades like a darkening theater. A silent void remains.

I’m on a moving bed. A woman is having trouble maneuvering it. Then, in conversation with another woman, she realizes it has a motor and turns it on. We glide through brightly lit narrow hallways. Where am I? Quickly an enveloping shadow overtakes the light.

Another small bright white space. How did I get here? I am in a small bed. I see Chris, my life partner, sitting back quietly in a chair. J, a friend, is closer, leaning toward me. I am covered in a crumpled white sheet. What has happened? Was I in an accident? If I was, I remember nothing. I search my body for clues and discover no pain and no discomfort other than befuddlement. I can’t quite make sense of my surroundings but I do feel cocooned by caring people. I am not afraid.

One “wall” of the cubicle is only a sliding curtain and it opens to a hallway of brisk activity. People also sit at a counter. It looks like a bar but they stare into computer screens instead of drinks. Sounds crowd my head, louder than my thoughts. People chattering, the clanging of carts and equipment. Orders being shouted. A woman nearby screams unabated. Her wailing voice reeks of uncontrolled fear and pain beyond limits. I wonder what has happened to her. I know she is in the right place and I wish her comfort and quick relief. I hope she is not alone.

A man walks in and introduces himself. He talks about what is happening to me but I cannot remember what it is. Information disappears like water down a drain, flushing out to sea, impossible to bring back.

Where am I? How did I get here? J must have brought me. Where am I exactly? Clearly I am in a medical facility; I see people in scrubs. There are intricate machines, electronic monitors, tubes and wires decorating the room. The crisp smell of cleanser and rubbing alcohol is in the air. I know something serious has happened to me. But what could it be? Is it a stroke? I search for anything to explain my circumstances.

People continue to ask me questions. I can’t seem to find the answers. I am stumped. I know I should know but I can’t recall no matter how hard I try. I scrunch up my face in deep thought, make an effort to recover the correct response, give up, chuckle and say, “Now, that’s a good question!” I do not know the year, month or day, where I am or why.

I am in another room; I don’t remember being brought here. Medical devices beep and tubes dangle from my right arm. Only Chris is in the room. I wiggle my feet; I am wearing bright yellow hospital traction socks. I have on a blue print hospital gown and, surprisingly, my own black pants. Other people come and go.

Chris explains to me what has gone wrong but I can’t remember what he says. What disturbs me most is I cannot recall where I had been before. What had I been doing? What had happened to bring me here? How could I not know? Something terrible must have happened. I plumb the depths of my mind; there is little there to reveal my recent life. The previous hours, days, weeks, are now muddled, elusive. I am told that I am in Dominican Hospital. I have visited friends here but this is my first time as a patient.

I begin to remember more about forgetting. I watch and recall how everything in the moment seems clear but then fades like a train disappearing down a dark tunnel. Two nurses check my body for lesions and wounds – a necessary protocol, I assume, for anyone who might be in the hospital for an indeterminate amount of time. There are no sores. I remember that I was clear when they were here, we chatted as they looked me over. But now it has become dreamlike, distant and vague. I know it happened just a few minutes ago but the details are gone, the image smudged, dim. I tell the nurse that I am losing memories; she nods with understanding.

People reassure me; they say I will recover soon. From what? I am repeatedly tested for stroke. “Squeeze my fingers.” “Lift your legs.” I pass each time.

Chris asks me if I remember J. Yes, I recall she had been with us. Had she brought me here? This must have been hard for J. Just a few months ago she had been in this hospital to remove a cancerous tumor from her brain. This is probably the last place she wants to be. But I am lucky, her natural concern and her experience navigating the local health care system has come in handy. Chris hates anything to do with doctors and medicine. This must be difficult for him too.

Finding memories feels arduous. I reach inside but only discover empty, silent space as though my own mind is shunning me, refusing to respond to my entreaties. Someone again asks me what year it is. Such a simple question. 2013 comes to mind as an image, lighted numbers on a black background. The date is followed by several blank spaces as

if they are waiting to be filled. Interpreting the mind image, I think it must be later than 2013. But what year can it be? How many years later? I do not know.

How can the circumstances of my life slip away like this? I know I had had other plans, important plans, for the day but I do not know what they were. I announce, as a kind of joke, “I didn’t schedule this. This wasn’t in my appointment book!” It is important to acknowledge to others the shock of my situation, to acknowledge the uncertainty of my life.

Some memories of recent weeks are returning but the previous five days are still out of reach. Chris interviews me while making a video. He prods me to recollect, to find and gather the memory fragments that have fluttered away.

“What did you do on Thursday?”
I pause. “Uh . . . I don’t know.”
“It’s something you like to do.”
I contemplate this. Then an image of the seashore comes to mind. “I went to the beach! I thought I dreamed that.”

“And what did you find?”
I pause. “I don’t know.” Chris waits.
An image of a small container appears in my mind; I look in.
“Sea glass! . . . I thought it had been a dream!” I smile at the pleasant recollection.

My ability to think is slow and thick like old honey that is too congealed to flow. When I am asked a question, there is initially no inner response, nothing evoked, nothing triggered, nothing known. Then gradually, out of the darkness an image approaches. The words and meaning come a few seconds later, if at all. Probably in ordinary consciousness the process of shifting from image to words is so fast it seems to happen simultaneously. But for now I get to watch the brain work in slow motion.

New memories are beginning to stick. A little while ago, only feelings and mental impressions lingered; I couldn’t retain detailed information. Now, for longer and longer periods, new memories, instead of sinking out of sight into murky water, float nearby, available when I need them.

I think I have already been told, but I ask Chris, “Where was I? What happened there?”

“You were teaching a daylong meditation retreat with M. At the lunch break, you couldn’t remember the morning. You were confused and J drove you to urgent care. M called me immediately.”

“Oh my god! I don’t remember it! M was here from Boston?” I had a vague feeling that M and I had discussed this possibility when I saw him over the Holidays, weeks – or was it months? – earlier.

“I left M on his own? Is he okay? I need to talk to him, check in with him.” I felt some guilt. I must have arranged for us to teach together and now I left him to fend for himself in a strange city.

Chris responds quickly, dismissing my need to be concerned. “Don’t worry about M. He’s fine; he finished the afternoon. He told the group that you had to leave because of a ‘bug’.”

 

I’m amused by this. Yes, some kind of bug alright, but not a cold or flu, more like a insidious computer virus infecting my brain.

I am stunned and disturbed to realize I had lost all memory of being with M earlier today. At the workshop I would have been sitting in front of a large group. I would have been speaking, giving instructions, answering questions. Did I behave normally or oddly? There would have been people there I knew, like J, but they had all been erased from my memory. Chris says that M and I met the day before to plan our workshop. I don’t remember that either.

“Did people know there was something wrong with me?”

“Mostly not. But J thought there was something off at the end of the morning session. She talked to you for awhile and decided to bring you in to be examined. You had a CT scan and a EKG. An ambulance took you from urgent care to the hospital.”

I have no memory of the tests or the trip.

I dredge my memory banks for any images from this morning or the last few days. I realize the few mental pictures I do have, all have the same flavor. I can’t tell if I have dreamed, imagined or actually experience what I recall. This is startling. They are all equally dreamlike, difficult to retrieve, devoid of detail. Like a dream, they are familiar but they don’t seem to pertain to this waking world but rather to some other reality I haven’t really lived. I had assumed most of what I saw in my mind were dreams; especially since I feel like I have been asleep, totally absent, for days. I start asking Chris if specific events I recall are real or imagined.

 

The man in the white jacket I has met earlier returns. He tells me that he is a neurologist.

He asks, “How are you doing?”

I shrug my shoulders and raise my hands palm up, shake my head and smile, meaning, I don’t really know how the hell am I doing! Do you?

But Chris adds, “She is doing much better. She’s starting to remember things.”

The doctor explains, “You have Transient Global Amnesia. We don’t really know what causes it. Over the next few hours, you should regain most of your recent memories and your ability to make new ones. But you may never remember this morning. By tomorrow you’ll be fine. This probably won’t happen again. But we want to keep you overnight for observation.”

That’s okay with me. My body aches, a foggy confusion clogs my thoughts and I am tired, so tired. I am relieved to be surrounded by trained medical staff for the night and machines that monitor my well-being.

I ask Chris for my smartphone so I can look up Transient Global Amnesia (TGA.) My eyes burn and tire as I try to focus on the small glowing screen. After a few minutes I quit. But I first discover a few facts.

TGA is a rare neurological event. When it strikes, you lose the ability to make short term memories. Most people also temporarily forget the recent past, from days to months. You know who you, family and friends are. You still have what’s called “procedural memory”, you can do those things that you do by habit, like talking, getting dressed, even driving (although you might not remember where you are going.) Your personality, ability to interact socially, and even your sense of humor remain intact. Although basic memory returns, some people have cognitive and memory loss symptoms that linger for weeks and even months. The doctor didn’t mention this.

One of the most peculiar symptoms of TGA is the repetition of the same questions ever few minutes. It is like a video recording being replayed, with the exact same words, gestures and affect. Chris tells me I had done exactly this. Where am I? How did I get here? Again and again, forgetting that moments earlier I had been given the answer.

It’s most common in people between 50 and 75; the median age is 62. I am 62. There are many “precipitating events” common to people with TGA’s – hard exercise, sex, jumping into cold water, stress, a recent medical procedure – but it is not known why these experiences trigger the disruption in short-term memory. I had had a colonoscopy several days before. People who have a history of migraines are also more likely to have a TGA. I’ve had migraines since I was twelve. Occurrence is slightly higher in Scandinavians. I am of Norwegian descent.

It’s been 9 hours since I lost my memory. I now know the date, month, year. I know where I am and how I got here.

After Chris goes home for the night, I turn on the TV to entertain my stagnant mind and to enliven the stark impersonality of the hospital room. “The Matrix” is on. I am pleased and amused. Here is a tale that intermixes physical reality and mind-created worlds; it is an inquiry into what is real and what is not. Just up my alley tonight. Other movies come to mind that remind me of my situation, “50 First Dates”, “Memento”, “Groundhog Day.”

The new night nurse checks in on me.
As we chat, he asks, “Are you on the hospital staff?”
“No, why?” I am surprised by the question. Do I look like a doctor?
“Well, I heard you were teaching a workshop on medication this morning.”
I chuckle. “No, it was a meditation workshop!” I add, “Sometimes meditation can be as helpful as medication.”
After twenty minutes, I am weary of the movie and I retreat into the muffled quiet of the night-time hospital, the rhythmic beeping of machines, the murmuring of nurses, the soft rumbling of supply carts rolling by. It is hot in the room and the nurse opens a window. The courtyard fountain gurgles, adding a welcome soothing sound.

 

I am exhausted yet sleep seems unlikely with the headache, back pain, mild nausea and general malaise I feel. My heart and my spirit are heavy and fragile. It occurs to me that I could die tonight. Maybe I will slip into the darkness, that empty place of not-knowing and not return. Maybe death is like this not remembering, the same silent blackness into which my memories fade. If death is like losing my memory, then it’s not so bad, just a painless disappearing. A tender sense of fear and sadness arises as I recall my life and those I love. I know that someday, if not tonight, I will pass into that mystery.

It’s morning and I didn’t die. Despite feeling as though I hadn’t really slept, the night passed quickly, if uncomfortably. Chris has returned and we wait, a bit impatiently, for

me to get discharged. He’s at lunch in the hospital cafeteria, when the neurologist finally checks in on me and says I can go home. The doctor is confident that I will be fine. There is no follow-up treatment except to check in with my PCP. He repeats that the cause is unknown but speculates my incident might be related to my colonoscopy.

As I wait for Chris to return, I turn on the TV one more time. “50 First Dates” is on. I am delighted by the synchronicity. The Drew Barrymore character, like me, lost her short- term memory. Her cycle was one day; she would wake up each morning believing it to be the day before her head injury, every repeated new day after that lost. My short term memory, in the depth of the TGA, only lasted 1-2 minutes.

Relieved to be home, no longer a hospital inmate, I stretch out on the couch and watch the afternoon light stream through the silent redwood trees. All I want now is a warm shower and some sleep. All I want is to return to being someone who remembers.

Please do not reprint without permission. Contact Carla at: brennan.carla@gmail.com.

 

2017 Wildflower Photo Bouquet #1

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Here are some highlights from this year’s spring bounty of wildflowers. The most spectacular display has already been posted from the Carrizo Plain superbloom in March 2017. Go to: https://carlabrennan.com/2017/04/02/carrizo-plain-national-monument-march-2017/.

The photos in this post are from much closer to home in Santa Cruz, Santa Clara and San Mateo counties. By now, I know where and approximately when to find specific flowers, although there is some variation year to year. I may not see the same individual, but I am likely to discover an offspring.

BTW, I’ve given up trying to identify which wild iris is which. This area is home to a variety of native and endemic showy irises. Some iris species can vary widely in color, from pale yellow to to deep purple, making identification confusing. And, honestly, I haven’t buckled down to learn the distinguishing characteristics. In the past, I tended to call everything a “Douglas iris” but they could also be a native Fernald’s iris, Central Coast iris, bowltube iris, or one of the invasive non-native species. So now an iris will just be called “iris.”

Many of the flowers and other plants in California are non-natives brought here by the early Spanish explorers, ranchers, farmers and gardeners. Some native species, especially grasses, have been pushes aside, becoming rarer to find. I have indicated which of the plants I’ve photographed are non-native.

I stumbled upon a few flowers new to me this year (or at least I don’t remember them): Elegant Cat’s Ear (mariposa), California Milkwort, Prettyface, White Brodiaea and Yellow Glandweed. And I love that crazy reed with the strange reproductive organs as well as those berries with thorns.

More flower photographs are likely to come. June and the summer months bring a host of additional blooms. However, sadly, the biggest display is probably behind us for this year (except at high elevations!).

Please do not reproduce any photographs without permission. Prints are available for purchase for some photographs. If you are interested, contact Carla at: brennan.carla@gmail.com. You can also find Carla’s photographs, paintings and jewelry on her Etsy site (Stones and Bones): https://www.etsy.com/shop/stonesandbones

This gallery contains 59 photos

Golden Gate Bridge From the Air

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This was taken on May 9th as I flew to San Francisco from Boston. Although I’ve made this journey many times, this was first time our route took us north of San Francisco and down the coast. From my window seat I got a good view of the Golden Gate Bride below. Although always stunning, this was my first time seeing the bridge from above.

GGB-2

GGB-3GGB-5

 

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Don’t Hurt the Mushrooms!

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I walk through the forest for exercise and the feeling of aliveness in my body, to breathe in the refreshing exhalations of the trees, and to see what might reveal itself to me. After the rains begin in the fall, I also look for mushrooms and related fungi. Hiking in the Pine Flats area of Henry Cowell State Park last November, I wandered down a side trail encouraged by some mushrooms I spotted near the path’s beginning. However, I soon discovered that someone had recently stomped on every mushroom that grew on the side of the trail. The only people I saw were a man and his perhaps 10-year-old son. Were they the mushroom mashers?

Sadly, this is not uncommon.

I recall as a child being with other children who had been told that mushrooms were “bad” and should be destroyed. This was unfathomable and disturbing to me. I suspect this is still being taught. Mushrooms are associated with death and decay. A few are, of course, poisonous and can kill, others cause illness and hallucinations. But these are rare and easy to avoid. Cars kill and houseplants can poison; do we stamp those out? Mycophobia is the fear of fungus and, like all irrational fears, is based on what is perceived as unknown, out of our control and vaguely threatening. But mushrooms and the fungal world are truly our friends; they keep the world in balance.

My grandfather shared his love of mushrooms, teaching his grandchildren how to make spore prints to help with identification. He had books about mushrooms and a collection of his own photographs. Although I like being able to accurately identify mushrooms (and wildflowers and birds, etc.), I am actually most excited by the treasure hunt of finding them. The reward is in the surprise, the beauty and the unearned gift of witnessing an ephemeral wild thing.

I rarely pick mushrooms anymore and usually do so only if I plan to consume it. There are several species that are hard to get wrong and are reliably good to eat. But mostly I leave the prize edibles, the uniquely beautiful mushrooms and the commonplace ones alone, sometimes creating a record of our encounter through photography.

The true living organism of the fungi – the mycelium: all those white threads found throughout healthy soil – are the veins, lungs and nervous system of the forest. (The mushrooms are the fruiting body like an apple on a much larger tree.) There is generous exchange between the trees that create sugars from photosynthesis and the mycelium that transport minerals and fluids. They provide inter-plant communication and distribute the wealth of resources. This intricate web of tiny fungal fibers is so extensive that in a cubic inch of soil there can be eight miles of these cells. It’s called the “Wood Wide Web.” Listen to Radiolab, “From Tree to Shining Tree”
http://www.radiolab.org/story/from-tree-to-shining-tree/

Did you know that fungi are more closely related genetically to animals than plants? Once considered part of the plant world (which is what I was taught in school) they now have their own separate kingdom.
Watch this TED talk, “Six Ways that Mushrooms Can Save the World.”
https://www.ted.com/talks/paul_stamets_on_6_ways_mushrooms_can_save_the_world#t-150788

So please do not harm the mushrooms. If not for the mushroom’s sake in its attempt to reproduce, then for the nature lovers who share these trails with you. Each time a mushroom is spotted, respect its essential role in the forest and its rare appearance like an exquisite wildflower.

All mushroom photographs were taken in the Santa Cruz Mountains in Santa Cruz County, CA between November 2016 and March 2017. Please do not reproduce any photographs without permission. Prints are available for purchase for some photographs. If you are interested, contact Carla at: brennan.carla@gmail.com. You can also find Carla’s photographs, paintings and jewelry on her Etsy site (Stones and Bones): https://www.etsy.com/shop/stonesandbones

This gallery contains 49 photos